环境、社会和治理新闻和媒体

通过明星加速病人的结果

凯特Finegan — 星期一,2020年4月13日18:05:09 + 0000

< span > < a href = " //www.onehalfbooks.com/news/accelerating-results-patients-through-star " hreflang = "和" >加速的结果病人通过星< / > < / span > <时间datetime = " 2020 - 04 - 23 t19:00:00z " >星期四,04/23/2020 - 15:00 < /时间> < div > < div > < / div > < div >类型的内容和总结多媒体< / div > < / div > < div > < div > < / div > < div >布局特色媒体< / div > < / div > < div > < div >身体< / div > < div > < p > Alexion的愿景,不断提高酒吧为他们实现病人预期解决方案设计随着人们——这意味着我们要花时间去理解他们的社会和情感生活,以及他们的医疗条件。< / p > < p > 2019年,我们创建了明星——解决方案加速病人的结果——一个框架和方法来加速企业范围的解决方案的开发和整合内部和外部的见解对病人的经验。明星的任务是召集内部和外部利益相关者识别和解决紧急病人的挑战。< / p > < p >的一些明星到目前为止的成就包括:< / p > < ul > <李>创建和实现病人和利益相关者价值(PSv)模型,深化我们对病人的理解企业级模型和涉众的旅程。李李< / > < >开发一个互动解决房子病人和涉众的见解和解决方案。李李< / > < >定义Alexion的企业诊断策略(见42页)。李李< / > < >驾驶整体病人和涉众NMOSD经验模型,PNH和威尔逊的疾病。作为这些飞行员的一部分,我们创建了病人和涉众体验概况,结合病人和照顾者账户的体验,情感和民族志的见解。李李< / > < >嵌入组织和扩大心态成规实实在在的行动。< p >我们正在学习意味着什么真正倾听的艺术。这是一个完全不同的方法,而不是促进我们的消息的响应,我们谦卑地听病人和利益相关者面临不断理解挑战和最好的方法我们可以为他们服务。——< em >亚撒米。,国际集成和转换< / em > < / p > < /李> < / ul > < p >了解Alexion正在改变患者的生活在我们的< a href = " https://csr.alexion.com/ " target = "平等" > 2019年企业责任报告。金博宝手机版网页< / > < / p > < / div > < / div > < div > < div >视频< / div > < div > < div > < div class = "视频" > <视频类=“embed-responsive-item”控制= " = " //www.onehalfbooks.com/sites/default/files/styles/video_posterframe/public/videos/thumbnails/612361/thumbnail - 612361 - _0002.png?海报h = 7 a6e80fd " > <源src = " //www.onehalfbooks.com/sites/default/files/videos/STAR_Video_-_External.mp4 " type = "视频/ mp4 " >标记您的浏览器不支持视频。

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罕见疾病患者听力和学习

凯伦做饭 — 星期一,2019年7月15日19:45:00 + 0000

< span > < a href = " //www.onehalfbooks.com/news/listening-and-learning-rare-disease-patient " hreflang = "和" >听力和学习的罕见疾病患者< / > < / span > < img加载=“懒惰”src = " //www.onehalfbooks.com/sites/default/files/styles/carousel_2x/public/images/alexionimage071519.jpeg "宽度= " 1092 "高度= " 890 " alt = " typeof = " foaf:图像" / > <时间datetime = " 2019 - 08年- 07 - t18:00:00z " >结婚,08/07/2019——14:00 < /时间> < div > < div > < / div > < div >类型的内容的文章< / div > < / div > < div > < div > < / div > < div >布局特色媒体< / div > < / div > < div > < div >身体< / div > < div > < p dir = " ltr " >世界上罕见的疾病,很多状况依然没有得到诊断和治疗的,我们认真对待机会真的听和学习从病人和照顾者和他们的卫生保健提供者。Alexion,创新包括真正关注我们共同的努力,努力理解病人的需求,包括有意义的治疗。我们专注于在所有我们所做的创新来改善人们的日常经验与一种罕见的疾病。< / p > < p dir = " ltr " >这是尤其明显在我们最近FDA < a href = " https://bit。ly / 2 j8pjic“目标= "平等" > < / >批准第一药neuromyelitis视谱系障碍(NMOSD),一种罕见的、毁灭性的和慢性自身免疫性疾病的视觉神经和脊髓。< / p > < p dir = " ltr " > 2009年NMOSD开始我们的创新和一群专门研究人员和勇敢的病人铺平了道路。我们非常感谢所有的患者参加临床试验。< / p > < p dir = " ltr " >真正改变病人的经验,这种病意味着提供医学和更多。这意味着积极地聆听他们的意见,他们的照顾者和医疗服务提供者提供服务和支持,解决他们的需求。188bet上不了< / p > < p dir = " ltr " >最近,我们举办了< a href = " https://www.sumairafoundation.org/about-us/ " target = "平等" > Sumaira Ahmed < / > Sumaira基金会的创始人,致力于“< a href = " https://www.sumairafoundation.org/ " target = "平等" >照明的黑暗NMOSD < / >。“Sumaira与员工分享她的故事,包括医疗社区需要了解一个人的经验在收到这个诊断。188bet网址怎么打不开< / p > < p dir = " ltr " > Sumaira让印象深刻你从你遇见她:她是一位自称与一个充满活力的个性和时尚达人梦想成为宝莱坞女演员。当我遇见她时,我既吹走了,感动她的能量和动力。

When Sumaira started having vision issues for which she had no answer she visited multiple specialists. As her vision worsened Sumaira faced a hard truth: she was seriously ill, scared and needed answers. After additional evaluations, she learned she had NMOSD. True to her nature, Sumaira channeled this diagnosis into new purpose.

Sumaira shared her emotional journey with us, from the frustration of the initial diagnosis and worry about her future, to the fight for answers, the fatigue and isolation of learning how to manage the disease, and the desire to be a part of the decision-making process. She felt there was limited support or information for people living with the disease and took matters into her own hands by launching her own foundation to provide resources for the patient community.

We learned a lot listening to Sumaira and other NMOSD patients as part of our own Alexion journey. We know that living with a disease like NMOSD is not just about the medicine. As a leading rare disease partner, we can and should step up with support services that not only help people living with the disease manage through the day, but help them live their best lives. And so, as we partner with NMOSD community, we are committed to continued collaboration to build innovative tools and networks that answer their call.

Thanks so much for reading my latest article from my #RareInspirationChangingLives LinkedIn series. I look forward to sharing more in the months to come.

- Anne-Marie Law, Executive Vice President & Chief Human Experience Officer

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Originally posted on LinkedIn

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People-centricity:连接员工体验到病人的经验

凯特Finegan — 结婚,2019年6月12日16:21:53 + 0000

< span > < a href = " //www.onehalfbooks.com/news/people-centricity-connecting-employee-experience-patient-experience " hreflang = "和" > People-centricity:连接Employee病人经验< / > < / span > < img加载=“懒惰”src = " //www.onehalfbooks.com/sites/default/files/styles/carousel_2x/public/images/alexion_employeepatientexperience.jpeg "宽度= " 792 "高度= " 198 " alt = " typeof = " foaf:图像" / > <时间datetime = " 2019 - 06 - 12 t18:00:00z " >结婚,06/12/2019——14:00 < /时间> < div > < div >小标题< / div > < div >的anne - marie法律,病人和员工体验总监Alexion制药、Inc . < / div > < / div > < div > < div > < / div > < div >类型的内容的文章< / div > < / div > < div > < div > < / div > < div >布局特色媒体< / div > < / div > < div > < div >身体< / div > < div > < p > Alexion,罕见的和毁灭性的疾病的人是我们的灵感。我们知道,从第一次开始症状通常通过一个诊断和治疗的漫长道路上,生活在一种罕见的疾病是一个发人深省的新常态导航在管理其他生命的优先次序。< / p > < p >在Alexion我们每个人有责任以一种积极的方式贡献这个经验,并在这一过程中,我们不仅会改变我们服务的患者的生命,但我们自己的生活。这是我的#锚RareInspirationChangingLives LinkedIn系列。我邀请你跟我来,Alexion沿着我们的旅程我们增强我们的战略关注病人我们服务和员工;我的焦点< a href = " https://news.alexion.com/press-release/company-news/alexion-announces-creation-new-roles-executive-leadership-team " rel = =“平等”>“nofollow noopener”目标的新角色< / >作为病人和员工体验总监。< / p > < p >有一个内在的、强大的联系Alexion员工的经验和患者服务的经验。提供有意义的、有价值的解决方案,满足患者和照顾者的需求,我们需要创建一个工作环境,我们每个人都有权利能力,工具和支持执行我们最好的和最大化我们的共同影响。我们认为这是远远超过交付我们的价值,有效的药物。< / p > < p >在过去几周,我们的全球校园、波士顿、都柏林、苏黎世、多伦多和东京等进行一系列的练习设计更好地教育我们的团队对现实生活的一种罕见的疾病。这些会话期间,我们通常把病人,护理人员,医生和护士与我们分享他们的经验,并提供输入在罕见疾病管理他们自己的独特的挑战,激励我们不同的思考方式罕见疾病的社区服务。188bet网址怎么打不开这些课程给员工提供了一个新的目的感和移情作用更大; inspiring and motivating us to think, act and deliver results differently.

Ultimately, our goal is to reshape how we approach our work and restate our responsibilities within a rare disease patient’s journey. This means better orienting around patient needs, rather than around traditional functions, and engaging our people in new ways to create truly distinctive solutions that support our strategic imperatives. As we work to foster a closer link between employees and the patient communities we serve, I look forward to sharing more stories with you.

We know that anyone who works at Alexion can create an impact for good. It is our responsibility as a company to cultivate this with a supportive, enriching environment where employees can deliver profound change for patients.

I’m inspired by the motivation and energy thus far and excited to share our journey with you. Thanks for reading. Please stay tuned for my next post!

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Originally posted on LinkedIn

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